This is me doing my bit for Epilepsy Scotland with my local MSP. I spoke to him about my experiences with epilepsy and in particular my experiences as a student. He was very nice and seemed genuinely interested in what I had to say.
2 comments:
Anonymous
said...
Thanks Jane for all you do to raise public awareness and remove the stigma of epilepsy. MSPs have benefitted and now know more about epilepsy because you have openly shared your experiences. You are a great role model for young people and Epilepsy Scotland is grateful for all your support.
Hello, I just wanted to comment on how much I enjoy your blogs. i have suffered from Non-Epileptic Grand Mal Seizures for 7 years. I just got out of the hospital on Friday after 9 back to back grand mals. This time I escaped kidney dialisys but havent been so lucky in the past. Big black eye and 4 stitches. my point is, I enjoy your positive additude and the way you channel our feelings into your love of writing. I sit here in tears reading your stories. My problem is I have let my seizures ruin my life...they have been able to do nothing else, but your very positive and Im glad that someone can live with what we have with such a bright outlook. I wish you all the best. Colby Utah,USA
I was diagnosed with Juvenile Myoclonic Epilepsy when I was twelve years old, and since then I have been involved with Epilepsy Scotland in raising awareness for the condition.
As an extension of my work with Epilepsy Scotland, I decided to start a blog on my experiences with the condition. My aim is to help people with or who know people with epilepsy, and also teach people who don't know a lot about it about some of the difficulties I personally have come across in dealing with the condition.
I however am not a doctor and so I have to be very careful with what I say. I can't give out advice, I can only comment on my own experiences with it, so I'm sorry if I'm not much use in that respect.
I thrive on comments however, so feel free to leave a question for me and I'll get back to you as soon as possible. If you don't want to leave a comment, but would like to speak to me, my email address can be viewed through my profile.
Thanks for visiting my blog and I hope it can be of use.
2 comments:
Thanks Jane for all you do to raise public awareness and remove the stigma of epilepsy. MSPs have benefitted and now know more about epilepsy because you have openly shared your experiences. You are a great role model for young people and Epilepsy Scotland is grateful for all your support.
Allana Parker
Communications Manager
Hello, I just wanted to comment on how much I enjoy your blogs. i have suffered from Non-Epileptic Grand Mal Seizures for 7 years. I just got out of the hospital on Friday after 9 back to back grand mals. This time I escaped kidney dialisys but havent been so lucky in the past. Big black eye and 4 stitches. my point is, I enjoy your positive additude and the way you channel our feelings into your love of writing. I sit here in tears reading your stories. My problem is I have let my seizures ruin my life...they have been able to do nothing else, but your very positive and Im glad that someone can live with what we have with such a bright outlook. I wish you all the best.
Colby
Utah,USA
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